minervaandme.com (our site) is an initiative of the University of Oxford and has been established for the purpose of conducting the study described in the Participant Information Sheet (the study).
For the purpose of the Data Protection Act 1998 (the Act), the data controller is the University of Oxford, whose administrative offices are at University Offices, Wellington Square, Oxford, OX1 2JD.
We may collect and process the following data about you:
You may give us information about you or someone you are related to by registering for an account to use our site, creating a profile, voluntarily submitting photographs and information, corresponding with us and reporting a problem with our site. The personal information you give us may include your name, address, e-mail address and phone number, personal description, photograph and any other information you provide to us in response to the questions we ask as part of the study or which you otherwise choose to submit.
If you wish to provide information to us about anyone other than yourself as part of the study, you must obtain the explicit consent of that person before submitting any personal information relating to that person.
We use information held about you in the following ways:
The information you submit as part of the study via our site will be accessed and used by University of Oxford students, researchers and other staff in connection with the study as described in the Participant Information Sheet.
If you have given permission for your information to be shared with third party clinical researchers, your information may be shared with such persons.
If you have given permission for your photograph(s) to be published, your photograph(s) may be published in journals and other academic publications.
We intend to publish journal articles relating to the results of the study, but these publications will not include personally identifiable information except where participants have given their express permission to publish their photographs.
In line with the aims of the study as described in the Participant Information Sheet, we intend to make the results of the study and the technology we are developing available to be used by clinicians and healthcare services in the future. This may require us to enter into collaborations and other arrangements with academic and industrial organisations. Your personal information may therefore be shared with such organisations in these circumstances, but it will be used in accordance with the permissions you have given to us via our site and you will still be able to view and delete your information and change your permissions.
We may disclose your personal information to third parties if we are under a duty to disclose or share such information in order to comply with any legal obligation or to protect the rights, property, or safety of the University of Oxford, its members, or others.
All information collected via our site is stored on our secure servers in Oxford, England. It may be transferred to and processed by University of Oxford researchers and other staff based outside of the European Economic Area (EEA), and if shared with third party clinical researchers and collaborators as described in the section above, it may be transferred to and processed by those third parties outside of the EEA. By submitting personal information, you agree to this storing, transfer and processing
The Act gives you the right to access information held about you. For further information about this right and how to exercise it, please see the University of Oxford’s Policy on Data Protection.